Brooke Eby Obituary, UNITED STATES — Brooke Eby, an ALS advocate who used social media to document her experience with amyotrophic lateral sclerosis and help others better understand the disease, has died at age 37, according to the ALS Network.
Eby was 33 when doctors diagnosed her with ALS in March 2022, following years of symptoms that began with a persistent limp. What initially seemed like an issue that could be explained by exercise eventually led to years of medical examinations and uncertainty before doctors confirmed the progressive neurological disease.
Following her diagnosis, Eby began publicly documenting her life with ALS under the online name “limpbroozkit.” She shared the changes brought by the disease, including increasing difficulty walking, eventually using a wheelchair, and the challenges of adapting to everyday activities.
Her approach combined direct conversations about the realities of ALS with humor and personal storytelling. Through her videos and public appearances, Eby showed audiences the physical and emotional challenges associated with a disease that can affect movement, speech and breathing while leaving a person’s thoughts and personality intact.
In 2023, Eby founded ALStogether, a community intended to connect people living with ALS, caregivers, advocates and others seeking information and support. The community provided opportunities for members to exchange advice, discuss research and clinical trials, and connect with others who understood the experience of living with the disease.
Eby’s advocacy also helped raise more than $1 million for ALS research. Her public work brought greater attention to the disease and encouraged conversations about the experiences of people living with ALS. In 2026, the ALS Network recognized her contributions by naming her the recipient of its Dean and Kathleen Rasmussen Advocate of the Year award.
Eby died on Thursday, October 1, 2026, at the age of 37, the ALS Network confirmed. Her four years following diagnosis were marked by advocacy, storytelling and efforts to build community around people affected by ALS.
Her legacy remains in the community she helped build and in the people who came to better understand ALS through her openness. Eby used her own experience to create connection, raise awareness and support research, leaving behind a lasting contribution to the ALS community. Her memory will be honored by those who followed her journey and were touched by her work.